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I talk about Autism, a lot

The Autism Narrative is Big Business and I should Know

5/29/2014

4 Comments

 
Picture
Did you know that my story, your story, your child's story is big business? Wanna know how I know? Because I am profiting off of it every single day. I am a blogger edging so close to 'writer' that it hurts and I am using my story, our story, her story, to showcase what I've got. I've got 'chops', I've been told. I've got 'voice' and 'heart', but if I were writing fiction would I be so popular? If I were writing children's literature would I be such a prize? It hurts my brain, you know. Every time I get paid for writing about our family and Kate, I wonder, if I am just another tool (so to speak) in this big business called autism. If you hashtag autism you'll draw in a crowd that is hungry for answers and for solidarity. A crowd that is desperate for help and understanding. I am one of you and I am using us for profit. I can pretend that spreading awareness is the goal but paying off the line of credit is the goal. Paying for Kate to have private therapy is the goal. Saving for her future is the goal.


Your story and my story and their stories are big business. People will take your money and in exchange offer you a small bit of comfort or hope. People will take your money and offer a false promise and a shallow hug. People, like me, will take your money because we know you will click and read on anything related to autism because you are so afraid and so alone. 

Be careful, then. Be careful when you listen to the promises people will make to you. Be careful, when so called professionals have news of cures and answers. Be careful, when 'writers' tell their story. Be careful.

4 Comments
Diana
5/29/2014 11:24:21 am

I understand what you are saying. I would love to be able to do this for my son's disability. He has ARND, for 2 reasons to help others that dont know where to go or how to get support and to build a financial future for him.

Reply
Amy Pollock
5/29/2014 11:46:15 am

Whilst raising funds may be the immediate goal you are going above and beyond that and there is no way you can deny you have raised far more awareness than an average 'Joe Bloggs' blogger, is there really a need to choose one other the other? I think you do an excellent job of raising funds whilst raising awareness! I recently wrote an essay for my psychology degree on autism, assessment and treatment and throughout could not stop thinking about your family, you've helped open my eyes and make me more aware for a start. "Alone we can do so little, Together we can do so much" Helen Keller

Reply
Grama
5/29/2014 06:11:35 pm

Huge difference in your blog, YOU CARE !

Reply
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11/6/2014 02:18:37 pm

They might possibly end up being square, block or even sq . along with completed edges.

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