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I talk about Autism, a lot

Cinnamon is My Safe Word

11/28/2014

2 Comments

 
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Lately, everything reminds me of shit I don't want to be reminded of. Kindergarten registration, playdates, birthday parties, christmas concerts and all that other 'good stuff' is punching me right in the feels. I want to worry about my growing line of credit or my growing ass, but instead I perseverate like a motherfucker about the stuff that I can't change. I'm only asking for a short reprieve; a rest from the constant guilt, shame, worry and anger that consumes me. So, Cinnamon, for Christ's Sake, cinnamon; because cinnamon is my safe word.

2 Comments

Dear Oakley: An Autism Service Dog Answers Your Questions

11/21/2014

11 Comments

 
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Dear Oakley,

Isn't this Autism Service Dog thing really a racket? Frankly, I am sick of hearing about it.

Sincerely, 

Charles "I'm still not sold that autism is anything more than bad behavior" Dickson

Dear Chuck,

Obviously, autism has yet to touch your life, but with number like 1 in 68 you're sure to be touched soon. It's going to hurt, too. It's going to hurt really bad; especially because the guilt you'll feel for never allowing yourself to understand this complex disorder will overwhelm you. You're done having children (I hope) and thankfully all your children are fine and even successful for many reasons. I'm sure you credit their stern upbringing for their successes, while I'm sure they don't. When they have children I sincerely hope you don't have to hear the words: "Dad, I think there is something wrong with my baby" because Chuck; that's going to crush you like you could never ever imagine. And if that happens Chuck, you'll do anything and everything earthly possible to help that perfect little grandbaby of yours get by in this world, including getting a service dog like me.

Best,

Oakley

p.s. That reminds me. I must suggest service dogs be trained to relax cranky old bastards
.


Dear Oakley,

Why should you be allowed in public and in schools? What if my child is allergic to you? What then? Are Kate's needs more important than my child's needs?

Sincerely,

A Concerned Parent


Dear Concerned Parent,

My girl, Kate, uses up every ounce of her little body's energy to navigate a world that seems strange to her. Her brain is wired differently and much of what we take for granted can be physically and mentally anguishing for her. We refer to her energy as tokens. A birthday party, for example, may take 40 of her 50 daily tokens. A visit to the grocery store may use 25 of those tokens. Many days, simply negotiating her day can use up many more than the 50 tokens she has available. Sometimes that little ninja will be so confused and so overwhelmed by what is expected of her that she'll cry four times before noon. That is where I come in. I will help her hold onto those tokens by keeping her safe and calm in environments that her brain cannot make sense of. Furthermore, I keep that little girl safe from elopement (running off) which is extremely common in children with autism. She is anchored to me (literally and metaphorically) and I won't ever let her go.

Now, to answer your question: I'm sorry, what was it again? Your kid has allergies or something?

Best,

Oakley

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Dear Oakley,

How do I distinguish Kate's bad behaviour from her autism?

Sincerely,

Joan "Why is she so bad" Vaughan

Dear Joan,

Kate exhibits behaviors at times and some of them may seem terrible to you, but as long as I am around she will not be defined by them. Her behaviors are a manifestation of her utter confusion with a world full of people that won't take the time to try and relate to her. Do you understand? She is Kate; a little girl who loves ninja turtles and superheroes and hugging. We spend far too much time talking about what she does that is considered "bad" or "wrong". I think you can tell by the look on our faces in this photo that we don't want to hear it anymore. Why don't you ask me about all the cool things we do? Or you could ask me what I love most about my girl. It's her hugs, by the way. She has mastered the art. Maybe, that's exactly what you need?

Best,

Oakley
.


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Dear Oakley,

What about Kate's sister, Grace? It seems cruel to keep her from the dog in her home. What's the point?

Sincerely,

A. Softy


Dear A. Softy,

I get it, I really do. It does hurt Grace's parents to watch her shrink sadly back while I do my job with Kate. Just so you know, Grace finds ways to spend time with me, even if she isn't supposed to. Worry not though, Grace's parents have weekly "Gracie Nights" where the focus is entirely on her. She lives for these nights and it is great fun to watch her bask in the attention she so greatly deserves. In fact, her parents even bought her a cat to make sure she didn't feel left out when I arrived. It's a sad consolation prize if you ask me but she seems to be thrilled with her strange little cat.

Best,

Oakley



11 Comments

Daylight Savings Time is a Drag

11/18/2014

1 Comment

 
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The days are short and the nights are long. Morning wake up calls are earlier than ever and none of really know if we are coming are going. Daylight savings time is a drag and I bet you'd agree.

This year I am going to try really hard to keep our spirits up with some fun family activities. I won't pretend I'm going to scour pinterest and make
these but these are a sure bet.

The less I self-medicate with wine and chocolate the better, so I'm going into this season with a plan.

Happy and funny titles on Netflix, Only: Titles like
this, and this and a family favorite of ours, this.

Great books that will make me smile, like this one and this one.

Walking that gorgeous new dog of ours with the goal to make him give in before I do. It's a lofty one, I know, but it will keep me moving.

Getting rest when I can, so that means saying no to some of your events. I think you'll understand.

What do you do to get through the season? Got any tips for me?


1 Comment

This Autism Service Dog Has Ruined Me

11/13/2014

8 Comments

 
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"Weave it, Oak-wee. Weave it Awone!" Kate belts as Oakley eyes the cracker she has just dropped on the floor. He won't budge, of course.   

With his articulation-defying name and ready set list of commands Oakley "Long Legs" Mouland has bounded into our hearts in a big way. Wait, what...?

What's happening to me? I sound all corny and happy and stuff.

That big old, brown-eyed Labrador has ruined me.

Never again will I be able to drink the good stuff and use my disdain for parental ideals, or policy-makers or even the human race, to write, because I am so damn pleased that this dog is laying at my feet as I type. What is this feeling?

Try as I will to come up with witty, sly or even dramatic prose, all that comes to mind are fanciful phrases about the bond between an autism service dog and his little girl.

It's really killing my editorial calendar, if you know what I mean.

If I ever had an edge, Oakley has smoothed it.

I thought this dog was here to help Kate?

8 Comments

A National Service Dogs Graduation Speech

11/5/2014

6 Comments

 
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"If there are no dogs in Heaven, then when I die I want to go where they went."

    -Unknown

When your child receives a diagnosis your world spins. Your mind tries desperately to manage emotions so intense you wonder if you’ll ever make it through. And then, then you find someone else just barely able to stay afloat and you look at them; secretly, at first. How do they do it? Do they feel the guilt, shame, fear? Do they feel a love so fiercely protective that they can hardly breathe? Are they like you? And, when you realize they are like you. You open up a little, and then a little more. You talk, you laugh, and you share. You bond because there are few like you and your friendship will be rare. This week many of these rare bonds were formed and for that we am grateful.

All our life we have realized that it is dogs, without ego or fear of failure, that are the most superior of friends. It is this friendship that we want for all of our children. Whether it be a loyalty that keeps them safe in a world so difficult to navigate or whether it be the deep pressure that makes them feel calm; it is a dog that I wish will help us teach our children all the most important lesson about life.

A dog, like a parent, will love a child more than it loves itself. It is for this reason these dogs are the only therapy suitable to live in our world, day and night, year after year. If you need more evidence than that I will direct you to the kind brown eyes of any pup in the room.

You’ve no doubt bonded with your pup already. He likely adores you, too. If he could, this is what I believe he would say to you today:

I will miss my puppy raisers and trainers because they are my family but I know that you are now my family, too.

I won’t forget how selflessly and tirelessly they worked to show me how amazing I am, all the while, knowing they would be saying good-bye someday soon.

I won’t forget the patience and cuddles and treats. I won’t forget my lessons and all the hard work.

I won’t forget my first family who so kindly prepared me for my forever family. . I won’t ever forget.

I will love your child with such abandon that it will make you weep at times. That’s okay though, I will lick your tears, because I will love you, too.

I will protect your baby. I will keep them close and safe. I will be their connection to a strange world. I will be their safe place.

I won’t need words to understand what they need because I don’t use words either, you see.

Trust me and let me do the job I was born to do, raised to do and a job I take so very seriously.

And don’t think I won’t be providing some much needed therapy for you, too. A scratch behind the ear (where the philosophers say my soul is kept) and a kiss on the head and I won’t be the only one feeling on top of the world. Let me do that for you.

So, for now, get ready, because the best part of this journey is about to begin. What are you waiting for? Get me home to my kid! I have work to do. The best work in the world.

And if some of you have shed a tear today then let me lighten the mood with a quote to end this speech:

“A dog teaches a boy fidelity, perseverance, and to turn around three times before lying down.”
― Robert Benchley


Thank you,

Alex and Shanell


6 Comments
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