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I talk about Autism, a lot

One Year Later: 5 Reasons Why the Diagnosis Was a Relief.

7/3/2013

4 Comments

 
PictureOur Kate soon after diagnosis in July 2012.
You know what sucked? The months leading up to Kate's diagnosis sucked. The months directly after were a cakewalk in comparison.  

I've written before about how I knew something was different about Kate from birth.  I guess even earlier than those months before her DX she wasn't connecting and she appeared deaf and all those things that all parents of autistic children will talk about.  Those moments were not the worst. The worst, for me, were the short months after returning home from Disney, (where I finally accepted what I had suspected for awhile) while we waited for Kate to see the paediatric neurologist to get answers.  During those months we watched and waited and lived in fear of hearing the dreaded words.  When really, hearing those words allowed such a release of built up tension and fear that I now look back on that day with gratitude that we finally had a small piece to the puzzle, as they say.  

I had some level of denial leading up to that day but for the most part I knew.  The initial day of the diagnosis and the few days immediately after were difficult because we had to wrap our brains around what this might mean; but guess what?  There was a huge feeling of relief after the diagnosis and here is why:

1.  I had been agonizing over what was 'wrong' with Kate since she was born and now I knew that she had a neurodevelopmental disorder.  (If you are hurt by my use of the word 'wrong' then you misunderstand what I am saying.  Kate is perfect to me and I adore every bit of everything that she is.  She does have a disorder, however, and I have written before about how dangerous I feel ignoring that can be.  

2.  We now had a plan of action. Looking back, things did not go as smoothly as we would have hoped but we had a team of professionals helping us figure out our next step to help Kate.  

3.  I could stop obsessing over Kate's developmental milestones.  I could stop obsessing about why she wasn't talking or playing appropriately.  Now we knew, and we immediately relaxed our expectations and everyone was happier.  I did not say lowered, I said relaxed, so relax ;)

4.  I could throw myself into research and writing and networking to meet and learn and advocate for Kate.  I could finally direct the anxious energy into something good.  

5.  I could stop doing those stupid internet checklists.  "Does my child have autism?", "What to expect from your two year old" etc.  Someone should be policing those things.  I had everyone I knew diagnosed at one point.


I suspect I am not the only parent that found some level of comfort in hearing those words.  The unknown can be so much more consuming than the truth.  

4 Comments
Sara
7/2/2013 09:52:16 pm

As they say, knowledge is power. Once you know what you're dealing with, you can dig in and give it all you got. You're using your power for good :) XO

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Sonya
7/2/2013 11:30:00 pm

Totally get what you are saying. I went through so much Kleenex while searching for the diagnosis. After the diagnosis I felt like I finally found a starting point. A starting point in the process of helping my child. And I have to admit there was some satisfaction in sticking my tongue out at the relatives who told me I was "being too hard on her" (nothing like heaping mommy guilt on top of mommy worries) and the other so-called specialists who wrote me off as a frantic first-time mother!

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Robin link
7/3/2013 01:12:21 am

Yes!! Our son was diagnosed well beyond the point where we'd already started speech therapy. It was such a relief and a sense of power to finally have a diagnosis to justify our worries and guide our efforts from that point forward.

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click home page link
10/25/2013 03:03:15 pm

During those months we watched and waited and lived in fear of hearing the dreaded words.

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