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I talk about Autism, a lot

Newton Gets a Pass But Kate Has to Prove it?

11/6/2013

6 Comments

 
Picture
So, let me get this straight.  If you cannot see it, it must not be there?  So, because Kate looks like a blonde angel, eating an apple and watching Princess Sophia she cannot possibly have autism?  She cannot be developmentally delayed because you hear her speak and aren't children with autism non-verbal?  Don't they scream and hit and flap and jump and spin and otherwise make themselves known so we can rush to their sides and immediately start with behavior modification strategies that will extinguish such unnatural behaviors? 

Why do you scrunch up your face when I tell you she has autism?  Why do you look at her and say;  "Really?  I don't see it.  She seems normal to me?"  Is that supposed to be a compliment?  Should I breathe a sigh of relief and call my husband up with the good news?  "Guess what, honey?  Joan says Kate doesn't look like she has autism.  We are in the clear!" What are you looking for when you look at her face? 

Must you see something to believe in it?  What about gravity?  Newton gets a pass but Kate has to prove it?

I see the autism in Kate every single day.  Some of you do too, when you are privy to those physical manifestations that she'll treat you to at the grocery store or at the pool.  The inappropriate hugging (I know you love it, though), the babble, the verbal stimming, the jumping, the flapping and yes, even the screaming and biting.  There are many other ways autism manifests in Kate.  Some are amazing and some have us reaching for a box of wine.  Either way, Kate has autism.  She will always have autism.  You may not see it on days when she negotiated her way through her tasks like a champ.  You may not see it when her father and I expertly redirect her before it comes bubbling up and overwhelms her little body.  You may never see it because you don't want to.  You may see some of Kate's behaviors in your own children and it may send you into a state of denial that keeps you forever defending her right to be neurotypical.  I love that place of denial.  I know it well.  

Yes, there is such a thing as being on the 'quirky side of normal.'  It is even hip to be there, these days.  This is not the case for Kate.  She has a neurodevelopmental brain disorder.  Accept it.  We have.   She is still perfect in every conceivable way.  

6 Comments
Grama
11/6/2013 06:11:57 am

We are so lucky to be in Kate's life and I for one am thrilled every second I spend with my dolly :)

Reply
Irene
11/6/2013 07:34:56 am

Your wee Kate is perfect just the way she is. So is Grace. Wee dolls they are. I believe in lots of things we can't see, like wind, sounds and how my heart feels when I do see someone I love and, well, Shanell, you know!

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Laura
1/13/2014 09:13:09 pm

Thank you for this. In case that wasn't loud enough, THANK YOU FOR THIS. I need to staple this to some people's foreheads. Okay, so that might be violent and counterproductive. But nevertheless.... Thank you.
p.s.- if one more bloomin' person of a neurotypical kid says to me "Oh, but MY kid does that" when I talk about stimming or the other myriad ways in which autism has manifested itself in my 2 year-old, I WILL staple this to their foreheads.

Reply
Margrethe
1/16/2014 12:10:08 am

I hear you sister! And I so bad want to tell everybody with an opinion that I DONT CARE what you see or think or feel or experience. He has a diagnosis - set by someone who know what they are talking about.

Reply
Maureen
1/16/2014 06:56:03 am

I`m sure your little girl is a real gift to your family :)
I was working for and with a speech-language pathologist and had the pleasure to met an autistic little girl. She was sooo damn cute! Her therapist was really worried because her dad was late to pick her up and since the ,little Cutie is "real trouble" the therapist wondered how long it would take her to go crazy. That smile upon her face touched me, so I sat down next to her, sha was drawing faces. Never before has she drawn glasses, but I had mine on..so she tried to draw a girl with glasses. I helped her by "holding" the pencil with her...she could pronunce the words for "nose, eye, hair, ect." probably but still we were a real good team. She even showed me her favorite book, what she has only done once or twice before. The therapist couldn`t believe what had happend, as the father showed up the girl wouldn`t mind and kept on playing with ME! What a great honour.
So I think having an autistic child is for sure a lot of work I cant imagine, but meeting that little cutie like her, I`m sure you get back so much more. Oh by the way, the little cutie had NOTHING in her face or appearance, but an overwhelming smile - hearttouching. I will never forget that little girl. Autism is nothing you see in once face or body, but it might make you think twice before judging someone else.
I am 22 years old and since I am 17 I`m working as a volunteer with handicapped persons.

Love and appreciation,

Maureen

Reply
Heather
3/24/2014 08:01:15 pm

Hi, the comment about flapping made me remember something precious my son said aged 5 "I'm sorry my flapping is a problem for grownups Mummy. It isn't a problem for me."
That's telling you!

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