I cried twice today, so far. I am visiting the so-called 'happiest place on earth' and I have cried twice! Happiest place on earth? Maybe if you are the kind of person that wants to get engaged, married, honeymoon and pop out your first born here. For the rest of us, it is a slightly worse version of what you might expect. Don't get me wrong, most of our time here we are happy and smiling and spending all of our hard-saved money on the souvenirs you can buy at my next garage sale, but there are moments that test me. Like, the moment at Seaworld today when Kate decided to attack my face because the "Shamu Show" had music that was far too loud for her little ears. As I took her out of the show, she slapped me over and over until I pleaded with her stop and then she split my head open with her 'Dolphin-Trainer Barbie." Relax, it was minor. So minor that I can't find the cut, anymore. But, I cried. I pulled my sunglasses down over my eyes and watched her dad whisk her off and I cried. Next, things got fun, and Disneyish when we made use of the disability pass (more on that later) and "virtually waited" two hours to go on the 'Antarctica' ride. Both of our girls absolutely loved it and that made me beam. I got a taste of what the advertisements promised! After we made it through the park we decided to head home. Kidding, Kate demanded that we leave immediately, and we know better than to argue. Grace was happy to go home with the promise of a swim at our resort. We arrived home, with Alex's expert driving (I swear he could drive anywhere with ease) and headed for the pool. Soon into the swim, Kate told me to "Shhhhhh", and for Kate that is code for: "I am pooping right now so get away from me!" I immediately grabbed her out of the pool and ran for our room because if you are a parent you know how well swim diapers manage poop. She screamed and clawed and spit the whole way. She was pissed and she wanted the entire resort to know it. When I finally got her back to the hotel room I painfully placed her into the beautiful jacuzzi tub built for two that sits in the bedroom of our condo and rinsed her off before a nice warm bath. She screamed until she was changed and swaddled in a blanket and then I cried one more time.
I really don't want you to think that I am unhappy or ungrateful for the luxury of spending a week at Disney with my children. I just want to give you a true picture of how this week will go for a little girl with autism and her family. At the moment, both of our little girls are snuggled in the bed beside me sleeping peacefully and dreaming about a better day tomorrow. Alex is watching football and I am murdering a bottle of wine. As it should be.
13 Comments
12/30/2013 09:45:55 am
That's pretty much how our days go :) I think those touristy places are just plain hard, with small kids or kids with special needs. We don't generally fare well (the aquarium wiped us out yesterday and Sophie wasn't with us) we are done with touristy places for at least 6 months. Maybe you guys can tag team? One of you take Gracie for more ambitious places while the other joins with Kate for bits and pieces here and there? Just a suggestion. I hope tomorrow is more fun!
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Julie Urquhart
12/30/2013 10:21:36 am
I just love you and your honest posts. All us moms have been there...autism or no autism we ALL need those melt downs sometimes! Especially in Disney!! Xox
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paulette macdonald
12/31/2013 07:34:46 am
so nice to see your posts its to bad other people do not get a chance to see so they would have an idea of what a meltdown is all about it is not just that spoiled brat. Hope you get to enjoy the rest of your vacation enjoy that wine you deserve it
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Kim
1/2/2014 09:51:32 am
You brought a tear to my eye! You are an amazing person!
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Gail
1/10/2014 02:10:44 pm
We have noise canceling headphones that my 4-year-old son (also diagnosed with ASD) used at Disneyland in October 2013. He asked for them when he thought he may need them (i.e., on a couple of loud rides). If you'd like more info. about the headphones, please let me know.
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Dana
1/13/2014 08:44:15 pm
My youngest son has some special needs and some sensory issues (not SAD related) and we have done Disney twice. If you have the chance to go during September or October, I HIGHLY recommend it. There are no lines. We walked right on to almost every single ride. We rode every ride in Animal Kingdom before lunch one day! Going when the parks were not crowded really made the second time we went great. The first time was the trip that made us pursue a diagnosis and therapy options, so I'm sure you can imagine what that was like - but we loved the second trip!
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Becca
1/14/2014 12:02:48 am
Thank you for your honesty. I found your blog via your entry published by the huffington post. I too have a little girl with autism. Angelina will be 2 in May and was diagnosed this past August. As we laid in bed last night I was browsing your blog and looking at pictures of Kate. All of a sudden a little finger reached over and my daughter touched the image of your daughters face and she cooed "ooh" with a little smile on her face. I look forward to hearing about this journey from another perspective.
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Sabrina
1/14/2014 12:13:11 pm
My daughter, son-in-law & 2 grandchildren (2 & 5), and I all went to Disney World in 2011. No one in our group has autism, but it can feel your pain. We joke about it now, but there was at least one huge meltdown each day - by an adult! The kids were fine & had a great time! You got some great photos, so I'd say you had a successful trip. Keep your head up - you've got a great family there!
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Hey there,
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Laura
1/15/2014 08:13:37 am
I just stumbled upon your blog thanks to your "Dear Daddy" letter and kept reading. Don't know if you will ever consider another trip to WDW- but if you do (and if you have any flexibility in your schedule) you might want to consider mid January through mid February. We return often with our 4 children at that time and the parks are so much less crowded. We have had times when we've been asked "Want to ride again" without getting off the ride as there was no one waiting. A long line can really take the 'magic' out of your day!
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Jennifer Ferron
1/15/2014 08:50:40 am
I by no means will ever know what its like to be a parent with a child that has Autism. However I do know what its like to work with children with Autism, I do it for a living, and there are days I want to cry because a child is lasing out at me because of his/her own frustrations. Its human to cry, doesn't mean you are failing your daughter. From all I have read you are a great parent, and are willing to do what ever it takes to help your little one, and support her. Disney is overwhelming for anyone.. more so if its their first time.. ( I been 3 times.)
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Jesse
1/19/2014 02:23:53 am
I love you and your family. Thank you for being so awesome.
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