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I talk about Autism, a lot

Confessions of an Autism Mom

7/9/2014

4 Comments

 
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When I dream of Kate, she is chronologically the age at which I feel her social and verbal skills would be appropriate and it guts me every time.




Why does it matter?




Even though my brain knows I did not cause her autism my heart is not so sure. I continually trace my pregnancy steps as if trying to solve a crime but I constantly caution others not to fall victim to such self-hate.


Did I remember to take my folic acid?
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I am positive her big sister has suffered irreparable pain and anguish due to Kate's autism diagnosis and yet she still lines up for more. 




Crippling guilt.
At times, I feel like a righteous ass for writing so confidently about a world so convoluted and beyond my cognitive grasp, as if I have some sort of handle on things.


Denial.
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I avoid anyone that requires anything more from me than sharing a drink and a laugh. 


That means you.
I couldn't love her more. She is perfection to me.


I  would change her. 

For her.
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4 Comments
Jennifer Bentivegna
7/9/2014 07:00:58 am


Sometimes it feels as though the words you write were picked right out of my head.

Reply
Barbara Kolesnikov
7/9/2014 10:26:19 pm

Kate and Grace are so blessed to have you for their mother!

Reply
HP
7/16/2014 12:18:53 am

Crippling guilt is a complete waste of time. Don't give in to it.

Reply
Emily
7/25/2014 01:01:19 pm

I can relate to the guilt. In the past I have been obsessed with thinking that if Isabel hadn't been born 3 months early, she wouldn't have the delays and health issues she's had, including autism. Which leads me to obsess about what I could have done to prevent her prematurity. But as you point out, guilt is crippling. As in, holding one back, not helpful for me and more importantly, not helpful for Isabel. Still, she's 7 and I suppose I'll always have times when I indulge in the what ifs.

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