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I talk about Autism, a lot

5 Things that Broke My Heart in 2012 and 5 Things That Mended It.

1/4/2013

3 Comments

 
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I guess my title worked.  I got you this far.  I am such a sucker for titles like: 5 Ways to Train Your Cat, or 10 Things Every Mother Should Know.  I think the reason I click on them is because I am looking for that little piece of information that will make my life easier and I want it quickly and in point-form.  It just goes to show you how busy we all are.  We need our ground-breaking/life changing advice in under two minutes (less than thirty seconds if you can pull it off.) This must be why I am addicted to Twitter.  You won't get life changing or ground-breaking advice from me, at least not on purpose.  So, here you go, as promised; that list:



5 THINGS THAT BROKE MY HEART

1.  Receiving the diagnosis:  Yes, I was gutted.  We both were.  I am not going to pretend that I walked out of there with a new found ambition to fight for the rights of kids with autism everywhere.  I walked out of there in stunned silence.  I walked out of there as if it was a total surprise when we all know it wasn't.  See: the Diagnosis.  It sucked and then I cried.  

2.  Learning that our province would only fund/support one form of treatment (ABA).  A treatment that we don't entirely agree with.  See:  Hey ABA or Not the Lighter Side of Things.  

3.  Realizing that Grace was getting left behind in all of it and hearing her ask me why Kate still acts like a baby.  See: A Letter for Grace.

4.  Watching Alex fight so hard to organize Kate's treatment and reach roadblock after roadblock. See:  The Brick Wall and Autism Treatment.  

5.  Waiting and wondering if Kate will ever make friends or be invited to a birthday party.  This topic deserves its own post and it is coming but for now: parents out there; listen up.  Invite every kid in the class for Christ's sake.  How hard is that?  And if you know someone who is not doing that, call them an asshole, to their face, with your fist.  

5 THINGS THAT MENDED IT

1.  Kate's amazing therapists and doctors.  There are people that get it.  There are really progressive people out there that don't follow the status quo.  See In Case I Wasn't Clear Before  or  A Visit to the OT.

2.  Watching Grace take charge of Team Kate and help design the logo and take pride in being team Captain.  Watching Grace so patiently love her little sister that it could make you weep.

3.  Our amazing family.  There is no way we could manage half of what we do without them.  They take Kate to appointments and help with her diet.  They are helping build her sensory room. They watch the girls so we can go to the movies or out with friends.  They support us in every imaginable way.  

4.  Kate's progress and her amazing little personality.  See: 5 Lessons on How to Live A Good Life From a Little Girl With Autism.

5.  Every single one of you amazing Blog readers.  I swear to God when I started this bog I hoped for around ten visitors.  I figured, if Kate's therapists or doctors or close family members wanted to keep up to date on her progress they could check in here.  We had a few more than ten visitors.  We've had over 4000 hits in about 6 weeks.  Thank you so much.  
3 Comments
Stacy
1/6/2013 09:11:16 am

I am so glad that heart mending is part of this! I hope the New Year brings you only mending, no more breaking. You deserve only great things in 2013.

Reply
Shanell
1/7/2013 08:48:13 am

You are the best, Stacy!

Reply
Melissa
1/17/2013 08:10:21 am

YES. THIS. I cannot stand the exclusion of a child!!

"parents out there; listen up. Invite every kid in the class for Christ's sake. How hard is that? And if you know someone who is not doing that, call them an asshole, to their face, with your fist."

(FYI- If you need anyones fist to call someone an asshole to their face, you have my number)


I am so glad that for all the negatives, you've found a positive. 2013 is going to be a great year for you guys!

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