I'm not worried about today, for the most part, anyway. That's a luxury I have. Today, will probably be okay. Today she won't run away because Oakley, and others on her team, won't let her. Kate's version of autism, currently, is quirky and funny and only a little unbelievably frustrating for her and for us. We rarely see self-harming behaviours or violent meltdowns, anymore. Most of her aggression is directed towards me and I understand that, because I am a safe place. Her language, although largely expressive rather than receptive is getting stronger and those that know her can usually figure her meaning before long. I think she has some real friends. I know she has a few thousand folks who read this blog that would gladly play Paw Patrol or Star Wars with her, but school friends are different and so very important. I think you know what I mean. We reached out to the mom of a little girl in her class and then we waited, nervously, until we got a warm reply notifying us that their daughter would love to play with Kate after school someday. My stomach is full of butterflies when I think about this. I suspect it will go well, but I am nervous nonetheless. Kate doesn't really get nervous. She knows she'll kill it. My worries, these days, are focused in the future. Seems silly, I know. There is no use in worrying. It does nothing for me and even less for Kate. But I worry. I worry so fucking much. Tonight, I don't feel like detailing my worries for you. I just wanted to let you know. My mind is constantly interrupted by these worries. I do things to keep my mind entertained so that these worries can't completely overwhelm me but they are always there. Things I do to curb the worrying: Read a lot about autism Listen to a lot of audio books (Not autism related) Talk to Friends Drink wine with friends Watch Cat Videos on the Internet Drink wine with friends while watching cat videos on the internet Things I don't do, but should do: Exercise What do you do when things get rough; when your mind won't give you a moments peace?
3 Comments
Lisa G
2/18/2016 03:04:19 pm
Exercise while drinking wine with friends.
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Danielle
2/18/2016 03:32:30 pm
Watch trashy tv 😉
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Vasia Procopos
2/19/2016 02:58:25 am
Well. my daughter is 16 and although she "looks" ok her speech doesn't help her and very few can understand her, but she still sticks it out. She has a good friend Rafaella who over the years has become her shadow when they are together. The Future. At times it sucks me in and I feel like my thoughts/fears are drowning me and then she does something that I never expected her to ever do and a little ray of hope lights up and I tell myself. She'll be fine (how much I truly believe that is another matter). Keep going mom and just keep working with her. In the end somehow it ends up ok. Somehow.
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